Welcome to the UK Chronic Lymphocytic Leukaemia Forum (UKCLLForum)

Welcome to the UK's only specific forum for the patients, families, friends and carers of those diagnosed with Chronic Lymphocytic Leukaemia (CLL).

About This Forum
The UK Chronic Lymphocytic Leukaemia Forum (UKCLLForum) has been created specifically for the patients, families, friends and carers of those diagnosed with CLL within the United Kingdom. We recognise the specific needs and wishes of these members and have designed this website to satisfy this criterion. We also appreciate that because this medical condition affects those generally over 55 years old, there may be a reluctance to use such a resource as this, and in addition, the British culture is a little more reserved than other countries. We would therefore strongly urge you to overcome these obstacles and subscribe to this forum.

Forums Structure
The forum is simple to use, utilising a fairly formal structure to enable new members to look through previous topics on specific subjects. For instance all posts relating to Shingles will be found in a thread specifically named Shingles.

We have even included an Off-Topic Board for those that would like to use this facility.

It is also easy to create a new topic by simply selecting the 'New Topic' icon.

We have had to include a login facility to prevent unauthorised use by spammers or people trying to sell specific products. We all know that this can be a little inconvenient, but I would assure you that we have kept the required details to an absolute minimum. We will therefore only ask you for:

  • A username.
  • Your First and Second name, but there is no reason why these can't be the same as your username or even an alias.
  • Your sex.
  • Your email address. This is necessary so that we can mange the forum and prevent inappropriate use and provided details of threads posted to the forum.

Please be assured that we will not under any circumstances publish your details or share them with any other party. We want the members that use this forum to feel fully protected and we have taken preventative measures to ensure this.

There are no advertising banners or other forms of advertising whatsoever on this forum.

Finally, it will take time for this forum to establish itself within the UK CLL community, we therefore ask for your continued support in any way that you can.

Latest post on the UK Chronic Lymphocytic Leukaemia Forum.

View the most recent 20 posts.

Topic Made On: Feb 18, 2019 11:40am

Gender: Male
Posts: 97
CLL Tracker is an on-line website which records patient information and graphically displays the results of data submitted for CLL patients to review. The website was first released in October of 2010 and in that time some 330 patients, worldwide, have submitted their CLL information.

As a result of changes in data privacy and the ever changing landscape of CLL, the website has been redesigned to reflect these developments. As members of the UKCLL Forum who have subscribed to the site over the years, I would like to invite you to submit your more recent CLL/journey details. The 2019 survey can be found at the following address:

To date the 2019 survey has only been completed by a limited number of CLL patients (40). I would hope in the coming months that we can exceed the previous number of patients who have completed the survey.

I would assure everyone that the data submitted will not, under any circumstances, be passed onto any 3rd party. The information collated is only for the benefit of you.

The website can be found at the following address:

PS, my apologies if you have already been recently contacted.