Welcome to the UK Chronic Lymphocytic Leukaemia Forum (UKCLLForum)

Welcome to the UK's only specific forum for the patients, families, friends and carers of those diagnosed with Chronic Lymphocytic Leukaemia (CLL).

About This Forum
The UK Chronic Lymphocytic Leukaemia Forum (UKCLLForum) has been created specifically for the patients, families, friends and carers of those diagnosed with CLL within the United Kingdom. We recognise the specific needs and wishes of these members and have designed this website to satisfy this criterion. We also appreciate that because this medical condition affects those generally over 55 years old, there may be a reluctance to use such a resource as this, and in addition, the British culture is a little more reserved than other countries. We would therefore strongly urge you to overcome these obstacles and subscribe to this forum.

Forums Structure
The forum is simple to use, utilising a fairly formal structure to enable new members to look through previous topics on specific subjects. For instance all posts relating to Shingles will be found in a thread specifically named Shingles.

We have even included an Off-Topic Board for those that would like to use this facility.

It is also easy to create a new topic by simply selecting the 'New Topic' icon.

We have had to include a login facility to prevent unauthorised use by spammers or people trying to sell specific products. We all know that this can be a little inconvenient, but I would assure you that we have kept the required details to an absolute minimum. We will therefore only ask you for:

  • A username.
  • Your First and Second name, but there is no reason why these can't be the same as your username or even an alias.
  • Your sex.
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Please be assured that we will not under any circumstances publish your details or share them with any other party. We want the members that use this forum to feel fully protected and we have taken preventative measures to ensure this.

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Finally, it will take time for this forum to establish itself within the UK CLL community, we therefore ask for your continued support in any way that you can.

Latest post on the UK Chronic Lymphocytic Leukaemia Forum.

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Reply within the topic - Where did that come from?
Replied On: Oct 18, 2016 04:38am

Gender: Male
Posts: 12
Sunflower it appears it is not only Root canals we have to be concerned about. Please have a look at what I wrote this morning.....
"It is 3am and am awake with the noise in my ear and that heart beat sound in my ear.
Yesterday I finally had my emergency appointment with the dentist, strangely enough at the same time the other dentist that I made had phoned and for the 2nd time cancelled my emergency appointment for the 20th.
Now the big surprise and very important for all of us here. The teeth that are in the images above in the previous post above exposed and there is no pain even with the one showing the roots of the tooth ARE NOT ROOT CANALS so we have another big concern here but also highlights another hidden source of bacteria infection besides the root canals without any pain been present. The dentist did explain that are different reasons for that, but I will like to look more into it now.
Now back to the dentist, he has not extracted my teeth as I requested, he asked for my NHS number so he can communicate with my oncologists and once he establishes the high blood counts he will prescribe the prophylactic antibiotics and carry out the extractions, what concerns me is I have made them aware that I am already on antibiotics?
I also mentioned that besides the noise in my ears my right eye is showing signs of infection and I very concerned. It is almost a month since I lost the repair now.
But at least now we CLLers have another hidden source of bacteria besides the root canals. Before the loss of the repair and my own borescope inspection I would not have been aware that there is anything happening in those mollers.
My cousin has made me aware that in USA he had a similar situation, his dentist uses liquid nitrogen on the teeth and teeth that do not show any pain are attended. The tooth that was identified in his case the repair was removed the cavity was cleaned out and then iodine was applied to the area for about 2 hours before finally resealing it.
SO AGAIN it points to dental hidden bacteria in not only root canals but in teeth that we and our dentist assume all is fine."....