UK CLL Forum, UKCLLFORUM

Patient Profile for: Mark Raven

General
Mutational Status
Positive Prognostic Markers
Neutral Prognostic
Markers
Negative Prognostic
Markers
Chromosomes
Clinical Presentation
Drug Allergies

DOB:1955
male

       

 


 


General

I was diagnosed in September 2003 after having swollen glands in the neck and a cold which would not shift for a few weeks. I was 47 at the time, being 48 in the November. Probably like everybody else it comes as a great shock although I had what was supposed to be ME for a long time suffering bad night sweats, chronic fatigue, and aching joints which surprise surprise are some symptoms of CLL.

I had my 1st round of treatment of Fludarabine in August 2004 finishing in Feb 2005 after 6 cycles (had a break in Dec). This did not do very well and by Jan 2006 I started on Fludarabine/Cyclophosphamide. I only needed 5 cycles of this treatment as the results were excellent. I have been in remission for 2 and a half years but I am facing a new round of treatment in Jan/Feb. I was hoping for some information on stem cell transplants as this is an option I am considering but are struggling to come to a decision.

I live in Gloucestershire with my wife Sarah and one very active young border Collie dog called Lulu. We have no children, just completed the adoption process and ready to get a child when i was diagnosed.