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Introduction

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http://www.ukcllforum.org.uk/viewtopic.php?id=271
Topic by Abner1 on Feb 04, 2013 06:10pm

Hey Guys my name is Abner.I am a newbie on this forum.I search this forum through search engine.The basic purpose for join this community is that the topic of this forum is brilliant.Can any one tell me that when is the right time to have stricter environmental and social controls to reduce health diseases?

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Reply by Bubbles55 on Feb 05, 2013 04:21pm

Hi Abner ! I too am a newbie currently on watch and wait. You have not shared your CLL status. I think its sensible to operate higher hygiene protocols and to limit social interaction where you would be more at risk,
no matter when you were diagnosed. There are many on this site who will be able to give more in depth advice I am sure.

Reply by lartington on Feb 06, 2013 02:38pm

Hi, I think you maybe have to have a few bad experiences before you take "precautions" too seriously. My husband has had cll for about 17 years, he was fine on watch and wait for about 12 years. The overwhelming yearly chest infections made us change our lifestyle. We never go on planes,trains,buses,theatres, cinemas,restaurants. He never puts fuel in the car unless he wears the disposable gloves, never touches the credit-card touchpad without gloves, or doorknobs, he always has hand cleanser in his pockets, for loo doors, taps, friends never visit us if they have colds, coughs or tummy upsets, having said all that we sound liked a couple of loonies............... we survive, he is 73 he is still here, despite numerous medications, and nebuliser. It is better to be safe than sorry. Oh, almost forgot, never sit in the gp's waiting room, he always rings the surgery, says he has arrived and will somebody wave thru the window when it is his turn to go in. He has been having ivig every 28 days for the last 2 and a half years, I am sure that helps also.

Reply by lartington on Feb 06, 2013 02:40pm

Robert, I know this is in the wrong section, but I am not a computer expert. For patients who want to visit a cll specialist centre......... St James Bexley Wing Leeds is wonderful. We go every month, we don't live locally. We stay in an hotel near York. However, there is an hotel on the top floor of the hospital for patients having treatment and relatives, it is free for patients and 25 a night for relatives, it is clean, basic and has wonderful views across the skyline.