UK CLL Forum, UKCLLFORUM

New CLL Resource

Topic Made On: Oct 13, 2010 10:22am
Admin

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Posts: 96
I am announcing a new on-line resource for patients with CLL. CLL Tracker is an on-line system which records patient information and graphically displays the results of the data submitted for all CLL patients to examine.

CLL Tracker will provide, once data has been entered and processed, detailed information relating to the experience of other CLL patients in terms of:

Demographics
Diagnosis and staging
Prognostic markers
Blood results
Treatments

I appreciate that this resource in new, and for it to be successful, it will require the investment of a little of your time to complete the questionnaire (about 20 minutes, a lot less if you have not received treatment).

I would assure everyone that no personal information is requested (Date of Birth, Name, Location, etc) and that the information submitted will not, under any circumstances, be passed onto a 3rd party. The information collated is only for the benefit of you.

The website can be found at the following address:

http://www.clltracker.co.uk

I would very much appreciate your time and assistance in getting the CLL Tracker populated with data.

Regards

Robert




Replied On: Oct 17, 2010 09:32am
Admin

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Posts: 96
I would thank everyone that has participated and entered their information into the CLL Tracker. Some provisional data/charts, based on a limited population, has been uploaded to the site. However, for the prognostic and FISH data to be meaningful I will require a lot more submissions, and will be working on this in the forthcoming weeks.

If you have not had the opportunity to complete the on-line questionnaire then I would remind you that it will only take a few moments (if you have not received treatment, a little longer if you have).

The link to the website is: http://www.clltracker.co.uk

Once again many thanks for your support.

Regards

Robert





Replied On: Nov 20, 2010 01:27pm
Robert Cork

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Gender: Male
Posts: 160
Just a post to say that over 150 patients have now completed the survey and you might be interested in viewing the latest results.

If you have not had the opportunity to complete the on-line questionnaire then I would remind you that it will only take a few moments (if you have not received treatment, a little longer if you have).

The link to the website is:

http://www.clltracker.co.uk

Once again many thanks for your support.

Regards

Robert





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