UK CLL Forum, UKCLLFORUM

Bone Lesions

Topic Made On: Apr 25, 2008 07:29pm
Robert Cork

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Gender: Male
Posts: 160
This post is really just for the record as I have personally encountered something thatís a bit unusually in CLL.

As part of my routine CT scan prior to receiving treatment, they identified a number of bone lesions on the pelvis and the lower spine. This I understand is quite rare in CLL, but was of concern to my Haematologist to order a Bone Biopsy under CT Scan. The concern was that my CLL had transformed to something else which is known to cause bone lesions. The lesions which are about the size of a pea are actually indentations in the bone.

I received the bone biopsy results today which confirmed that they were only just CLL cells and nothing more sinister, which is good news.

Another interesting point is that these lesions were not on previous scans (2004), but the same scanner was not used this time, so these could of developed in the last 4 years.

Regards

Robert




Replied On: Jan 31, 2009 06:11pm
punterscorner

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Gender: Female
Posts: 3
I had a CT scan that showed bone lesions on my spine, but was told not to worry about it. I also have had my Eye completely haemorrhage and was told not to worry about it. I have a high WBC, swollen lymph node in my armpit, bloated tummy flu symptom's most of the time pains in my joints and extreme fatigue. and am still told don't worry about it. I just hope and pray my factory dose not shut down before somebody dose something for me! Ha Ha Ha Joan.



Replied On: Feb 01, 2009 10:44am
Robert Cork

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Posts: 160
Joan

As you are aware from the above I was diagnosed with lessions on some of my large bones. However, I am unable to provide any advice with respect to lessions on the spine and the likely effect of this.

In view of your other comments/conditions I think the recommendation from most would be to seek the advice of a CLL specialist. If you let us know your location in the UK we will be able to provide you with some suggestions.

Regards

Robert



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